No regrets in letting go of daughter

As Kaelyn's muscles wasted away, she could move only her arms. Mr Kelvin Chan and Ms Tay Shuhui with the clothes that belonged to their daughter Kaelyn, who died three years ago after her life support was withdrawn. Kaelyn was diagnosed with spinal m
Mr Kelvin Chan and Ms Tay Shuhui with the clothes that belonged to their daughter Kaelyn, who died three years ago after her life support was withdrawn. Kaelyn was diagnosed with spinal muscular atrophy (Type 1), and had a severe chest infection in April 2015 that led to an interruption in blood flow to vital organs such as her brain. She was three yeas old when she died.ST PHOTO: KEVIN LIM
As Kaelyn's muscles wasted away, she could move only her arms. Mr Kelvin Chan and Ms Tay Shuhui with the clothes that belonged to their daughter Kaelyn, who died three years ago after her life support was withdrawn. Kaelyn was diagnosed with spinal m
As Kaelyn's muscles wasted away, she could move only her arms.PHOTO: TAY SHUHUI

For more than a year as they watched their daughter grow up, Mr Kelvin Chan and Ms Tay Shuhui avoided one topic.

Since their daughter Kaelyn's first hospital stay when she was 10 months old, doctors were already asking them to think about what they wanted to do if her condition deteriorated further and if her ventilation mask was unable to keep her breathing.

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A version of this article appeared in the print edition of The Sunday Times on June 03, 2018, with the headline 'No regrets in letting go of daughter'. Print Edition | Subscribe