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Twins with rare genetic disorder get support for weekly $12,000 treatment

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ST20230514_202369136692 : Gin Tay/ amtwins21/ Amelia Teng TT/
Profile of madam Yang Kailin (centre) and her sons both 4, older twin, Hugard Tan (right) and younger twin, Reynar Tan at their Toa Payoh home on May 14, 2023.
///Five-year-old twins with a rare disease Mucopolysaccharidosis type VI (MPS VI) , which is the latest condition added to those accepted under the Rare Disease Fund set up by the Government. It is one of the five approved conditions.

Madam Yang Kailin and her sons both 4, older twin, Hugard Tan (right) and younger twin, Reynar Tan.

ST PHOTO: GIN TAY

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SINGAPORE – Once a week, eight-year-old Thaddeus and his younger twin brothers Hugard and Reynar spend about eight hours on hospital beds, hooked up to intravenous drips. 

The younger ones, who are turning five in July, think the outing is like a staycation, their mother Yang Kailin said, but it is in fact a lifelong treatment that her children will need because of a rare condition they have. 

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