3 kids in family struck by rare genetic disorder

Born bright and healthy, one died at age 10 while two others are paralysed and unable to talk

(Above, from left) Justina, Titus and Timothy Lang when they were living in the United States, where their father David Lang was doing his doctoral studies. (Right) Mr Lang and his wife, Mrs Lang Loo Geok, with Justina (far right) and Titus at the pl
Mr Lang and his wife, Mrs Lang Loo Geok, with Justina (far right) and Titus at the playground next to their block in Farrer Road. On weekends, they go to places like Changi Airport and Gardens by the Bay.PHOTOS: LIM YAOHUI, COURTESY OF DAVID LANG
(Above, from left) Justina, Titus and Timothy Lang when they were living in the United States, where their father David Lang was doing his doctoral studies. (Right) Mr Lang and his wife, Mrs Lang Loo Geok, with Justina (far right) and Titus at the pl
(Above, from left) Justina, Titus and Timothy Lang when they were living in the United States, where their father David Lang was doing his doctoral studies.PHOTOS: LIM YAOHUI, COURTESY OF DAVID LANG

His three children were bright, bubbly and humorous. They could read and write at the age of three, when most children were only starting to recognise letters.

But as the trio grew up, they started speaking less, walked with great difficulty and began having uncontrolled seizures.

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A version of this article appeared in the print edition of The Sunday Times on May 20, 2018, with the headline '3 kids in family struck by rare genetic disorder'. Subscribe