To get out of the house each day is my act of defiance
The writer, who has a terminal motor neuron disease, reflects on how he chooses to be curious and makes new discoveries as he engages with the world in a wheelchair.
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For the writer, going out is not just about reaching a place. It is also about the journey and, through that, engaging with the wider world.
ST ILLUSTRATION: MANNY FRANCISCO
Yeo Whee Jim
I have ALS, otherwise known as amyotrophic lateral sclerosis. It is a terminal disease that causes progressive degeneration of nerve cells. That part is straightforward.
What is less straightforward is what life is supposed to look like after that.